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  • Forums Archive - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • Community Forums - GBS|CIDP Foundation International Forums
    Community Forums Join the Conversation Connect with others who understand Join our community forum to share experiences, ask questions, and find support from people living with or caring for someone with GBS, CIDP, or MMN
  • Effects of GBS over 2 years later
    Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
  • donating blood - GBS|CIDP Foundation International Forums
    I had GBS in summer of 1995; shortly afterwards I was told that I should not give blood My doctor didn’t say it was because it might cause a relapse of my GBS; at that time I was told the reason was due to the IVIG treatments I received Something about how the many different people’s blood plasma being inrtoduced into my body during the treatments complicated the blood donating process
  • Register - forum. gbs-cidp. org
    What is the GBS|CIDP Community Forum? The Community Forum is a place for all patients, caregivers, friends, and family to find support, that is easily accessible, from those who may be experiencing the same, or similar, journey
  • Dental Treatment - GBS|CIDP Foundation International Forums
    My name is Danilo, I´m a dentist in Brazil and have a patient with a history of GBS about 8 years ago with excellent recovery She needs dental extraction and gums treatment I would like to hear from you any experiences about dental treatments Is there risks of relapse following dental treatment?
  • Need GBS Dr around Boynton Beach Florida
    My Mom is going through a bout of GBS for the 2nd time in 11 years We had an amazing Doc in NY last time, Dr Michael Swerdlow, but unfortunately she’s in SE Fla now She was in Del Ray Hospital and is now in Boynton Health Care Center Does anyone know a good neuro that treats this disease? HELP!!!
  • Is vitamin B12 Related to GBS
    For about 70 years B12 has been a ‘cure all’, to quote The Citadel by A J Cronin it was used to inject fat expensive bottoms Its only justifiable use is in B12 deficiency due to by proven failure of gastric absorption and causing pernicious anaemia (for which people used to have to eat 4lbs of raw liver a day) with the pernicious anaemia there may be subacute degeneration of the spinal
  • Elevated Blood Pressure and Heart Rate after IVIG - GBS|CIDP Foundation . . .
    Hello, Two weeks ago I received my first 3 IVIG loading doses for CIDP Although many of my symptoms have improved I have noticed that my heart rate and blood pressure are up from my longterm normal Can anyone tell me if this is something I should worry about or will it go away after a while? Thanks for your help, Petra
  • Does anyone else have problems with their voice? - GBS\|CIDP
    Hi, I am wondering if anyone else has problems with their throats or voice My neurologist said that normally people with cidp do not but it could be a sensory problem I feel like I have a lump on the left side of my throat and my voice feels tired I don’t know how else to describe it, it feels like I have been yelling I went to a ear nose and throat doctor He could not see any problems





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